Lyme time again? And rambles about movement disorders.
It’s been a while since I’ve had the Beginning of the Month Lyme Flare, but I suspect due to stopping the Azithromycin, it’s making a small comeback. No worries, though–I doubt it’ll have time to do...
View ArticleHow I Forgave the Doctors That Called Me Crazy
Now, I’m not about to type some grand, philosophical debate about the necessity of forgiveness that will go over everyone’s head… Or at least, I hope it won’t turn into that. This year I feel I’ve...
View Article“Pay attention to me, pay attention to how I got this, and how hard it is for...
I was going to make a more drawn-out post explaining why I’m not participating in any of the awareness campaigns of May concerning my illnesses…but then I came upon the realization that I don’t owe...
View ArticleGuest blogger: “It is healthy to talk about what you are going through.”
I’m here to make another installment to my Life Lessons section, but this time, with the words of a very special guest blogger. And I don’t say very special because they are well-known, famous, or...
View ArticleHaving determination does not always equal curing a disease.
I don’t think some people are prepared to hear that determination alone is not enough to beat a disease. You can do everything right and still get worse, and it’s not your fault. You can’t say being...
View ArticleRelapse Journey: Is Choosing Treatment Still Choosing Life?
Here, let me type this so you all won’t think I live in a happy-land bubble. (No, that’s not really why I’m typing this, but it’ll probably confirm it unintentionally.) This relapse has sent me on...
View ArticleIt feels like I’m talking about someone else’s life, sometimes…
So, in my last post, I said I’d give myself another two weeks off treatment and then re-evaluate my state of health to see whether or not I should restart treatment for Lyme disease. Something happened...
View ArticleWhat My Pain is Actually Like
It occurred to me one day several months ago that I’ve never stopped to answer a question people may have, the same question I often wonder about others in my situation: When I talk about being in...
View ArticleFireflies, Coyote Arias and Friendships Adrift (via My CFS Life)
I’ve been struggling a lot again lately with feeling marooned. In my spirituality, I am increasingly aware that I am intended to live differently, and that it is both grace and blessing. That doesn’t...
View ArticleJuly IGeneX results.
So a few weeks ago my IGeneX results returned to me. My Lyme test is more positive. This is actually good, believe it or not! As you improve and your immune system is less burdened, you get more...
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